An analysis of the ethical implications of the human genome project

This map will also enable us to determine the genetic basis of numerous physical and psychological traits, which raises the possibility of altering those traits through genetic intervention.

Ethical legal and social issues of human genome project

Article 27 2 states that anything that is necessary to protect the "ordre public or morality" can be excluded, as long as the exemption is not made simply because it is prohibited by law. Photograph: Bradley Smith. Whole genome sequencing would enable clinicians to look for mutations across the entire genome simultaneously for a much larger number of diseases or conditions. The Human Genome Diversity Project The Human Genome Diversity Project is still in its planning stages but its goal is to understand the diversity and unity of the entire human species. The report was released at a hearing before Albert Gore,Jr. NEJM, Once we pinpoint the genetic basis for diseases and other phenotypic traits, what parameters should be set for the acquisition and use of genetic information? Section 27 3 a states that member countries may also exclude diagnostic, therapeutic and surgical methods for humans and animals.

On the other hand, could genetic disposition be used as a defence on the grounds that the crime was really the fault of the gene, not the person?

S by To be patentable, discoveries must involve some human intervention and inventiveness.

elsi definition

Genetic analysis might reveal a myriad of genetic flaws that may or may not lead to disease, depending on what they are and how they interact with the environment. In the years since the HGP's completion there has been much excitement about the potential for so-called 'personalized medicine' to reach the clinic.

Human genome project controversial issues

With proper management and caution I feel that the Human Genome Project can benefit all of mankind with the some of the greatest discoveries of all time. This time lag is due to a combination of factors, including the need to validate research findings, the fact that clinical trials are complex and take time to conduct and then analyze, and because disseminating information and educating healthcare workers about a new advance is not an overnight process. The genomic library created by the genome project will provide a way to determine what the correct sequence is at a particular loci and the correct base pairs may be able to be inserted into the affected individual if technology advances to that point. Discrimination One of the problems some fear might result from knowledge of the human genome is the emergence of a whole population of socially marginalized individuals, unable to obtain a job, a family, insurance, or health care and stigmatized by the rest of society. The question remains, however, whether the ELSI program the best route to take in facing the social consequences of the Human Genome Project? Formally started in , the project was intended to complete the working reference genome by but technical advances have decreased the timeframe to 13 years. The public, including public officials, must not be misled about what ELSI can do, lest it let down its guard. Along with this new technology comes several problems, both technical and ethical. Whereas ethical, legal, and social concerns were previously addressed on a case-by-case basis, the accelerated pace of new discoveries from the Human Genome Project could render such an approach dangerously obsolete. Do doctors not have the moral obligation to provide the very best treatment to their patients and would not the eradication of the disease be more cost effective in the long run than continually treating adults with somatic gene therapy? The effects on the conduct of biomedical research and approaches to disease treatment could be revolutionary. In the past few years, the project has been viewed in a more applied manner.

Knowledge that one is or may be affected by a serious disease can create difficult situations for both patients and their families.

It is the job of genetic counselors to educate patients about the implications of genetic knowledge, and to help patients anticipate and deal with these challenges.

An analysis of the ethical implications of the human genome project

The initial approach was to break it into pieces, determine the order of the pieces, and then to determine the nucleotide sequence for each piece. I personally feel that it is an excellent project, with very good intentions.

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